Fuelin' Roadie
Nutrition tips for the bands playing their hearts out one town to the next!

A Roadie’s Cause: Time to Care

Will you be in Austin on Friday, November 6th?  If so you need to head on down to the Nutty Brown Café for the Randy Rogers Band’s benefit concert for Amberlyn Fett,  “My breath of life.”  This amazing show will benefit Amberlyn, her family, and their ongoing battle with Cystic Fibrosis.  

As a dietitian, I often work with individuals dealing with a variety of disease states. Probably, one of the most heart-wrenching is working with those living with Cystic Fibrosis.  Cystic Fibrosis (CF)  is a disease characterized by the accumulation of a thick mucus in the lungs.  CF affects ~30,000 children and adults in the US.  CF is a life-threatening disease that can also lead to other organ problems.  Although we are getting better at diagnosing CF, we still need to fight to find a cure for this disease.  CF patients face a lot of nutritional challenges.  Often they need almost 150% more calories than the average individual, reaching upwards of 4,000kcals per day!  CF kids have higher protein needs (~20-35% of their daily calories). Where most American take in too much sodium, CF patients need 3x’s the amount recommended for most individuals.  If there are other organ or disease complications CF patients have their own specific needs.  Sound nutrition advice and adherence is critical for a CF patient.  Their medical expenses are for the duration of their life, and only increase with the complications associated with CF. If you have a nutrition question relating to CF please drop me a comment and I’ll be happy to get back to you!  I hope you take time on Friday night to head down the Nutty Brown, enjoy RRB play, participate in the Silent Auction, and support this Roadie’s Cause!

Watch Randy & Amberlyn interact and talk about Friday’s event: http://www.youtube.com/watch?v=hJwcVlkJ410

Loving the Cause~

The Roadie Nutritionist

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